Library, Welcome, Post Polio Support Group of Maine, ME. 04345, Private, non-profit 501 [c] (3) organization. Information on the late effects of polio to more than nine hundred polio survivors, their families, and health care providers throughout Northern New England and parts of Canada. Support for our work comes from donations from the public and from a grant furnished by the Pine Tree Society, workers, Roosevelt, Canada, health-care, families, post-polio, muscles, fatigue, Pine Tree Society, March of Dimes, late effects, iron lung, salk, Southern Maine Business Directory

POST POLIO SUPPORT GROUP OF MAINE
ALPHA-1 HANDOUTS FOR
CONSUMERS & HEALTH PROFESSIONALS
* Informational packets may be obtained by contacting Alpha-1 directly.

Post Polio Support Group of Maine's catalog of recent periodic newsletters
List of Consumer Recommended Health Professionals

Books are now available through the libraries in Maine:

The Polio Paradox by Dr. richard Bruno
Post-Polio Syndrome by Dr. Julie Silver
Managing Post-Polio by Dr. Lauro Halstead
The Official Patient's Source Book on Post-Polio Sydrome
by Drs. James and Philip Parker
Living, Laughing and Loving Life by Dan Miller
Nana Needs a Nap by Beryl Baker

Routine consumer packet:
    Frequently Asked Questions about PPS
    Polio and Post-Polio Syndrome by Dr. Staas, Jr.
    Post-Polio Syndrome by Dr. Halstead
    The Late Effects of Poliomyelitis from Rehab Brief
    A Guide for Those Experiencing the Late Effects of Polio (Do's and Don'ts)
    What are Your Options?

Routine health professional packet:
    PPS Update - Diagnosis Process by Dr. Cashman
    Evaluation and Treatment of Polio Survivors by Dr. Gawne, et als
    Post-Polio Syndrome: An Update by Jubelt and Drucker
    Managing the Late Effects of Polio by Dr. Maynard

Information on medications and surgery:
    Latest information about medications for treating PPS by Dr. Perlman
    Anesthesia Concerns for the Polio Survivor by Dr. Calmes
    Preventing Complications ...Undergoing Surgery or ...Anesthesia -Dr. Bruno 2002
    Undergoing surgery soon, then here are some helpful tips for you. Helpful Tips

Cardiovascular/breathing info:
    Cardiovascular Issues and the Post-Polio Syndrome by Dr. Mayuga
    New Swallowing Problems from Polio Network News
    Post-Polio Breathing and Sleep Problems by Fischer and Headley
    Post-Polio Syndrome and Cardiopulmonary Conditioning by Dr. Owen
    (Respiratory) Advice for People with Polio .... By Dr. Alba
    Sleep-disordered breathing defined from Polio Network News Spring 1998

Therapy and Exercise:
    Strategies for Management of Arms and Shoulders by Brown and Caverly
    Effect of Modified Aerobic Training on Movement by Dean and Ross
    The Effects of Long-term Non-fatiguing Resistance Exercise by Fillyaw, et als
    Self-help Techniques for Managing Post-Polio Pain: Overview by Dr. Smith
    Dealing with Chronic Pain with Myofascial Release by Dr. Smith
    Muscle Spasms & Spasticity from Accent on Living, Spring 1996
    To Reap the Rewards of Post-Polio Exercise by Roller & Maynard, 2002

Psychological Adjustments and Miscellaneous:
    Prevalence and Associated Features of Depression and Psychological Distress in
    Polio Survivors by Dr. Tate, et als.
    Coping With The Late Effects: Differences Between Depressed and Nondepressed
    Polio Survivors by Dr. Tate, et als.

Nutrition and Post-Polio by Dr. Halstead

Fibromyalgia Is Common in a Postpoliomyelitis Clinic by Drs. Trojan and Cashman

ALPHA-1
Library Resource

BIBLIOGRAPHY
SPEAKER'S GUIDE
BOOKS AND BOOKLETS:
Meeting the Challenges of Aging with a Disability - Conference 1993
A Summer Plague - Polio and its Survivors by Tony Gould
In the Shadow of Polio - A Personal & Social History by Kathryn Black
Polio's Legacy - An Oral History by Edmund Sass (2 copies)
Post Polio Syndrome by Drs. Halstead and Grimby
The Potter's Wheel - The Life Story of Lillian F. Wall by Betsy Alexander
I Did It! So Can You! By Larry Fournier
Handbook on the Late Effects of Poliomyelitis for Physicians & Survivors by Gini Laurie, Drs. Maynard, et als.
Current Trends in Post Polio Syndrome by Drs. Trojan/Cashman
The Second Time Around - Living with PPS - 1996

MAGAZINES:
Magazine - Scientific American, April 1998, Post Polio Syndrome, Agre and, Rodriguez; pp are 1342-1347
Magazine - The Sciences on Polio Redux, July/Aug 1995, Dalakas, Bartfeld & Kurland, Pgs. 30-35

Magazine - Advance for Occupational Therapists on Post Polio Syndrome, May 1996

BOOKS:
Dr. Julie Silver's book, Post-Polio Syndrome, a guide for polio survivors and their families, which is in our library, is also available in paperback, at a cost of $15.95. Published by Yale University Press, it can be ordered through your favorite bookstore. It can also be ordered direct from the publisher by phone 1-800-405-1619 (with a $3.50 for postage and handling for the first book; 75 cents for each additional book ). Dr. Silver is medical director of the Spaulding Polio Center in Massachusetts. Her book is well-designed, well-written, and an up-to-date reference on PPS. http://www.polioclinic.com

MEDIA:
Tapes - 2 tapes on pain and fatigue from Post-Polio Health International (formerly GINI) International Conference in St. Louis 1988
Cassettes - 7 cassettes from 1988 conference at Spaulding Rehabilitation Center,
Includes: networking, swallowing & respiratory management, coping with new
disabilities, non-traditional approaches to pain management, physical therapy
CDs - Post Polio Syndrome - 1997 (3 copies available)

Note: Books/booklets are usually available only by visiting an Alpha One office.